I just wanted to take another moment to thank everyone who is trying to help our family. I don't know that words can accurately express how thankful I am. I've been dealing with this disease for eight years now and, in general, have been extremely lucky in pulling together the resources needed to fight it. There have been wonderful people who have helped us out, be it watching the kids while we travel to an appointment, or sending dinner, or making a friendship quilt, or just listening to me kvetch. But, this....this just breaks a whole new level of generosity and effort...and I'm not sure what to say.
I was hanging out with P1, earlier, and we were talking about how our life has changed. She told me that, even though we have a solid relationship, she does miss the mom that "could go places and do things without getting sick." When I told her that you guys were trying to get some special film for the windows, she immediately understood what that would mean. She said, "OMG! You'd be able to sit with us in the living room and watch movies again." For the last year or so, that's been too long to sit in the family room. She was so excited about that small improvement. As she listed off the things this might enable me to do, she finally said, "It's freedom." I've been telling Berlzebub that I can't wait until I can sit in the nursery with the little ones and play or watch them play. I don't know how to thank you for that.
I'm usually the person, in my community and family, who organizes these things. But, I kind of suck at being on the receiving end. So, if I fumble these words up, please know that what I really want to say is: From the bottom of my heart, thank you.